Zebra, EDS, Hypermobility, Rare Diseases, Chronic Illness, MediStori
Last week the MediStori team were discussing how they could raise awareness about complex conditions that we come across on a daily basis, through talking to patients, carers and charities. So when Olive asked me would I write a blog post on Ehlers Danlos/Joint Hypermobility Syndrome, due to my complete
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If you had asked me months ago who a carer was I would have said a carer was a middle aged lady who looked after the elderly, a little like paid home help. However, since working here on the MediStori Movement, I’ve come to realise that I couldn’t have been
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As I came in from another long day at work, my three girls (and three dogs, I might add!) all came running at me – just before I got a chance to glance at the post that had arrived that day. After seeing their happy faces and hugging them tightly, I
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Quick Update Since Original Blog as Below: On the 16th May 2015, Olive was awarded the National JCI Young Person in Medical Innovation 2015 and is now shortlisted for the International JCI TOYP Awards! #onwardsandupwards You hear conversations all the time where people discuss that someone is outstanding for the
 
  This is how I told my story at Heart Children Ireland’s National AGM…   “Hi my name is Olive, and I am a mum of three girls; Micaela Nicole and Mackensie.  I was going to tell my story spontaneously , but every time I practised doing it this way,
 
The boy who died too soon…how a simple scratch on the arm led to his death from the worldwide killer known as Septicaemia. I knew this family. I knew this little boy. And it was such a shock when this happened. But if you had asked me what was Septicaemia,
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At 7.30am last Tuesday, I found myself talking aloud in my car, en route to Dublin, practicing for a presentation that I would be delivering at the National Patient and Service User Forum that same morning. Looking back,  I was really getting into it and I quite animatedly corrected myself
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“Taking account of the perspectives of patients and their families is crucial to articulating the reality and identifying the gaps between patient safety measures possible and the levels of safety being experienced by patients.” Building a Culture of Patient Safety, July 2008 Staff Guide to Patient and Public Participation, Cork
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Barack Obama, flu shot, cold, flu, cold and flu season, sick, unwell, sickly, sneezing, coughing, fever, MediStori,
Last Thursday, on the 30th April 2015, the 3rd National Medicines Forum was held in No.6 Kildare Street, Dublin 2 – also known as the Royal College of Physicians of Ireland.  Upon walking in the doors of this truly remarkable building, you honestly feel like you’ve stepped back in time – you can feel the
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Is our health service just so bad, that no-one ever gets better…? Do you know someone who survived cancer? Did you ever have an infection cleared up by an antibiotic? Or maybe you had a lot of pain and the right treatment alleviated it? If you answer yes to any
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